I was at a party tonight and a few people that I hadn't seen in a while said they had seen the blog and asked about Weston. I so appreciate that people care to know how he is doing and I realized I'm a terrible blogger and should probably post an update once in a while. Especially since I have good news. Mr. Weston is doing so well that his occupational therapist thinks he received the cord blood! She said over the past few weeks, she has seen an improvement rate that surpasses what she has seen before or what she would expect to see from Weston given his diagnosis. Anne Fitzgerald told me that we would probably see results 3-6 months post infusion if Weston received the cord blood cells. It's just really interesting that Tara (Weston's OT) is seeing big changes right now, right at the three month mark. She put Weston in the wheel barrel position the other day and he supported his body weight on both hands. She even shifted him to his left side and he didn't collapse. I mean, that is huge people! He is also choosing to reach for things with his left arm even when his right arm is free. He used to NEVER do that.
Before we went to Duke, I really thought I would drive myself crazy after the infusion wondering if he got the stem cells. I haven't gone crazy at all. I am just so happy with his progress and I don't even care what's behind it, I'm just glad he's doing so well. In fact, the other day, one of my friends told me I was being an overprotective mom because I was following him around the baby pool like crazy anticipating a fall. I don't think I was being overprotective at all but I do think it's awesome that she thinks I was. That tells me that she doesn't think Weston NEEDS me to follow him around. I'll keep following him because if he falls underwater, I don't want to take the chance that he can't lift himself out. But the fact that other people don't really recognize that he does need me tells me he is doing pretty good!
