Sunday, April 1, 2012

Back Home

It has been about 3 weeks since Weston's infusion. I never got around to blogging about the last day we were at Duke, but there really wasn't much to tell. Just physical therapy assesments for a few hours and we headed home. Many people have asked if I've seen any changes in Weston since we've been home and the answer is yes. However, I haven't seen anything crazy miraculous happen. He improves everyday. One day he can't say any words and the next he can say "go" and "ratrer" (cracker). Then for a few days he doesn't say anything again. He is improving with spontaneous reaching with his left hand. We have a toy where you push a button and a door with an animal inside opens. Weston always shuts the doors with his right hand unless I hold it down and force him to use his left. Today he shut the door with his left without me holding his right. It was still uncoordinated, but he chose to use it and that is huge! He is also walking down stairs holding my hand and squatting better since we've been home. So basically, he is showing improvement everyday but I'm not willing to say that I believe it's due to cord blood. I guess this is why they have a hard time determining whether it works or not! I don't really care how he improves, I'm just happy he is improving! I think they also gave him an IV of happy while we were there because he has been the snuggliest, sweetest boy lately! He is really into hugging right now. He takes lots of hug breaks while he plays. He'll be in the middle of something and then he will just stop, come give me a hug and go back to playing. That's it for now...hopefully I will have much more to report...especially since according to Anne, we won't see results for 3-6 months if he did receive the blood!